Second Opinion

This morning we had another appointment for a sonogram at a different hospital to see if we could confirm the findings of the first. They indeed found many of the same abnormalities, but need to conduct further test to really give us a clearer picture. It was frustrating to leave there not knowing much more than we did going into the sonogram, but as Katharine put it, "at least we have some direction."

The biggest concern that they found for the moment is a potential double aortic arch in the heart. This potentially surrounds the trachea & esophagus which could cause breathing and swallowing issues. Unfortunately, the baby was not in a good position to properly diagnose so we have to go back for a follow-up next Monday. If they find this to be accurate then surgery will be needed shortly after birth. At this point the Dr. has suggested that we consult with a team of specialist to help piece together potential "syndromes" that may be present. This will be coordinated by another genetics counselor. There are so many different scenarios on the spectrum of potential syndromes/abnormalities that they cannot give us many answers right now. That is the most frustrating part, but by partnering with this team of physicians we will be able to have some answers soon.

Thanks for listening and all of your concern. Keep the positive thoughts & prayers coming. We should have another update next Monday.